Maternal & Child Health
Resources on the Internet

Gene Editing

Graphic source: https://www.vox.com/science-and-health/2016/12/30/13164064/crispr-cas9-gene-editing	Graphic source: http://www.vox.com/2016/2/1/10886644/crispr-news-uk-niakan

• 4 things you wanted to know about gene editing 2/2016
• A guide to CRISPR, the human gene-editing tool that has scientists excited and terrified Vox.com 5/2015
• A Pause to Weigh Risks of Gene Editing
• AP News Guide: Summit opens debate on ethics of gene editing 11/2015
• A prudent path forward for genomic engineering and germline gene modification 5/2015
• Breaking Taboo, Swedish Scientist Seeks To Edit DNA Of Healthy Human Embryos 9/2016
• Chinese 'Edit' Human Embryos, Scientists Urge Moratorium on Research ndtiv.com 4/2015
• Chinese edit human embryos, spark fury indiatimes.com 4/2015
• Chinese Paper on Embryo Engineering Sparks International Debate AAAS.org 2015
• Chinese researchers have genetically modified a human embryo and many scientists think they've gone too far Qz.com 2015
• Correction of a pathogenic gene mutation in human embryos 8/2017
• Chinese Scientists Edit Genes of Human Embryos, Raising Concerns NYtimes 4/2015
• Chinese scientists genetically modify human embryos Nature.com 4/2015
• Chinese scientists: We've edited genes of human embryos seattletimes.com 4/2015
• China shocks world by genetically engineering human embryos telegraph.co.uk 4/2015
• Controversial Human Embryo Editing: 5 Things to Know 9/2016
• Craig Venter: We Are Not Ready to Edit Human Embryos Yet 2/2016
• CRISPR Cas9 genome editing induces a p53-mediated DNA damage response 6/2018
• CRISPR gene-editing system unleashed on RNA 6/2016
• CRISPR Off Switch Could Increase Precision Of Gene-Editing Tool 12/2016
• CRISPR: The new tool in the gene editing revolution explained 4/2016
• CRISPR-Cas9: From super humans to UC vs MIT fight over patent 5/2015
• CRISPR/Cas9-mediated gene editing in human tripronuclear zygotes 4/2015
• CRISPR/Cas9-mediated gene editing in human tripronuclear zygotes 4/2015 PDF
• Designing Superhumans NPR.com
• Don�t edit the human germ line Nature.com 3/2015
• Easy DNA Editing Will Remake the World. Buckle Up. 7/2015
• Editing human embryos with CRISPR is moving ahead � now's the time to work out the ethics 7/2017
• Editing Human Embryos: So This Happened Nationalgeographic.com
• Engineering the Perfect Baby Technologyreview.com 4/2015
• Ethics of embryo editing divides scientists Nature.com 3/2015
• Everything You Need to Know About CRISPR Gene Editing's Monster Year 12/2015
• Gene editing's promise, risks focus of scientists summit 11/2015
• Gene-editing technique offers hope for hereditary diseases Sciencedaily.com 4/2015
• Gene Editing Technology CRISPR-CAS9 May Not Work On Human Complex Traits Such As Intelligence 12/2015
• Gene Manipulation In Human Embryos Provokes Ethical Questions Huffingtonpost.com 2015
• Genome Editing Technologyreview.com
• Genome Editing, Bioethics, Policy and Politics in the UK and in the US 9/22/2015
• Genome-editing tool could increase cancer risk 6/2018
• Guidelines for human genome editing 1/2016
• Heritable genome editing: Action needed to secure responsible way forward 7/2018
• HIV Can Resist CRISPR/Cas9 Gene-Editing Attacks: Study 4/2016
• Impact of Genome Editing Techniques 4/2016
• In Breakthrough, Scientists Edit a Dangerous Mutation From Genes in Human Embryos 8/2017
• Industry Body Calls for Gene-Editing Moratorium 3/2015
• Is gene editing moving too fast? CRISPR scientist raises concerns. (+video) 12/2015
• NOTICE PERTINENT TO THE NOVEMBER 2013 REVISIONS OF THE NIH GUIDELINES FOR RESEARCH INVOLVING RECOMBINANT OR SYNTHETIC NUCLEIC ACID MOLECULES (NIH GUIDELINES)
• Opposition mounts to genetic modification of human embryos 11/2015
• Plan to Synthesize Human Genome Triggers a Mixed Response 6/2016
• Promise and peril: a primer on gene editing 2/2016
• Read This Before You Freak Out Over Gene-Edited Superbabies
• Scientists Call for a Summit on Gene-Edited Babies Technologyreview.com 3/2015
• Scientists create first genetically modified human embryo Engadget.com 4/2015
• Scientists Find Form of Crispr Gene Editing With New Capabilities
Scientists Say They Hope To Create A Human Genome In The Lab 6/2016
• Scientists Upload a Galloping Horse GIF Into Bacteria With Crispr 7/2017
• Scientists Want to Create Synthetic Human Genome 6/2/2016
• Scientists want to perfect humanity with synthetic DNA 6/2016
• STAT-Harvard poll: Americans say no to designer babies 2/11/2016
• Study raises fears of collateral damage in gene editing 7/2018
• The Genome Engineering Revolution 5/2015
• The Genome Project Write 6/2016
• The Public and Genetic Editing, Testing, and Therapy 1/2016
• The rumors were true: Scientists edited the genomes of human embryos for the first time Washingtonpost.com 4/22/2015
• The WIRED Guide to Crispr 4/2018
• UC Berkeley, MIT scientists argue over patent rights to gene-editing tool 5/2015
• Using CRISPR, scientists efficiently edit genome of viable human embryos 7/2017
• U.S. Public Wary of Biomedical Technologies to Enhance Human Abilities 7/2016
• What is CRISPR and what does it mean for genetics? 4/2016
• What Is CRISPR? 4/2017
• Where in the world could the first CRISPR baby be born? 10/2015
• Why China won't listen to Western scientists about genetically modifying the human embryo Qz.com 6/2015
• Will Genome Editing Allow Scientists To Create The Perfect Baby? 11/2015
• World's first genetic modification of human embryos reported: Experts consider ethics Sciencedaily.com 4/2015

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Genomics

Graphic source: https://www.washingtonpost.com/news/speaking-of-science/wp/2016/03/01/scientists-identify-genes-associated-with-gray-hairs-and-unibrows/

Graphic source: https://www.sciencedaily.com/releases/2016/08/160802172614.htm GTEx Portal Five Misconceptions About the Role of Genomics in Public Health 7/2016 11 Surprising Things Your Genes Say About You 8/2016 A Brief Guide to Genomics genome.gov A Longer Life May Lie in Number of Anti-Inflammatory Genes Livescience.com 4/2015 A major difference between DNA and RNA could explain why one is the go-to blueprint for life 8/2016 Applying Public Health Strategies to Primary Immunodeficiency Diseases A Potential Approach to Genetic Disorders MMWR 1/16/04 Accessing your own genomic data is a civil right but requires strategies to manage safety 1/2018 CADASIL (Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy) Genetics Home Reference National Institutes of Health CDC's Office of Genomics & Disease Prevention Charting Genetic Variation Across the Globe NIH.gov 10/2015 Consumer DNA Tests Are Wrong 40 Percent of the Time 4/2018 Crime scene discovery: Scientist separates the DNA of identical twins Sciencedaily.com 4/2015 Critical step found in DNA repair, cellular aging 3/2017 Genetics has learned a ton — mostly about white people. That’s a problem. The overwhelming whiteness of genetics research is holding back medicine. dbGaP database of Genotypes and Phenotypes. NIH.gov Designer Medicine Needs More Than Big Data, It Needs New Science 4/2016 DNA can't explain all inherited biological traits, research shows Sciencedaily.com 4/2015 DNA Fingerprinting WebMD DNA repair discovery could lead to drugs to reverse ageing, fight cancer and help space travel 3/2017 Don't Give Your DNA to Giant Genetic Databases 5/2018 Ehlers-Danlos syndrome MedlinePlus Epigenetics: A Revolutionary Look at How Humans Work Explaining Epigenetics': The Health Buzzword You Need to Know Time.com 6/2015 False-positive results released by direct-to-consumer genetic tests highlight the importance of clinical confirmation testing for appropriate patient care 3/2018 Family Health History Toolkit Utah.gov Family History and Improving Health AHRQ.gov Family History is Important for Health CDC FDA Rule for Current Good Tissue Practice for Human Cells, Tissues, and Cellular and Tissue-Based Products MMWR 5/20/2005 Frequently Asked Questions (FAQs) on the CODIS Program and the National DNA Index System FBI.gov Genes explain why we are sick in winter Nzhearald.co.nz 5/2015 Gene Linked to Optimism and Self-Esteem NIH.gov Genetic Brain Disorders MedlinePlus Genetic Disorders MedlinePlus Genetics Home Reference Genetic Testing for Developmental Disabilities, Intellectual Disability, and Autism Spectrum Disorder AHRQ.gov Genetic Testing Registry NIH.gov Genome Biology Genome.Gov Genomics and Public Health at CDC MMWR 12/2006 Genome-Wide Association Studies Genome.gov Home DNA Kits: What Do They Tell You? 4/2018

If European Borders Were Drawn By DNA Instead Of Ethnicity Is It Possible to Clone a Dinosaur? 4/2016 10,000 Microbes Cornered in Map of Human Body Livescience.com 6/2012 Keeping Pace with the Times The Genetic Information Nondiscrimination Act of 2008 NEJM 6/2008 Learning A Foreign Language Isn't All About Discipline And Dedication Genetics Play A Role As Well 6/2016 Low levels of simple chemical associated with aging, DNA damage 3/2017 March of Dimes Metabolic Disorders MedlinePlus Mothers' Exposure to Air Pollutants Linked to Chromosome Damage in Babies NIH Newborn Screening for Cystic Fibrosis New England Regional Genetics Group One gene makes earwax wet or dry BBC Organization of Teratology Information Services (OTIS) Personal microbiomes shown to contain unique 'fingerprints' Sciencedaily.com 5/2015 Pharmacogenomics Knowledge Base (PharmGKB) Stem Cells - Q & A Webmd Talking Glossary of Genetic Terms Genome.gov 23andMe has a problem when it comes to ancestry reports for people of color 8/2016 Undermining Genetic Privacy? Employee Wellness Programs and the Law 5/2017 NEJM Wealth and power may have played a stronger role than 'survival of the fittest' Sciencedaily.com 3/2015 What Both the Left and Right Get Wrong About Race Setting the scientific record straight on race, IQ, and success. 6/2017 What.s changed in genetics since your high school biology class? 8/2016 What does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act Coalition for Genetic Fairness What's in Your Genes? Ancient Parasites Livescience.com When your genome costs less than your iPhone: The beautiful, terrifying future of DNA sequencing Why Bad Genes Aren't Always Bad News Utoronto.ca 11/2016 Why bad genes aren't always bad news 11/2016 Why bad genes don't always lead to bad diseases Sciencedaily.com 7/2015 Why do we have blood types? Why would scientists want to build human genomes from scratch? Your DNA Changes With the Seasons, Just Like the Weather Wired.com 5/2015 You won't believe these three unexpected discoveries and neither did the scientists who made them 9/2018

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Genetics Education

• Genetic Alliance
• Genetic Counseling MedlinePlus
• Genetics Education Center (University of Kansas Medical Center)
• Genetics Education Modules for Teachers
• Genetics Education Network
• Genetics Home Reference
• Understanding Genetics - A Guide for Patients and Professionals Genticalliance.org
(Also for PHCE)
• University of Kansas Medical Center Genetic/Rare Conditions

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Gene Therapy

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• Genes and Gene Therapy MedlinePlus

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Genetic Testing

• Genetic testing: Opportunities to unlock value in precision medicine
• Genetic Testing for Hereditary Cancer Syndromes Cancer.gov
• Genetic testing results don't change how most people behave 3/2016
• Prenatal Genetic Diagnostic Tests
• Prenatal Genetic Testing Chart (Infographic)

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Growth & Development

Graphic source: https://46y5eh11fhgw3ve3ytpwxt9r-wpengine.netdna-ssl.com/wp-content/uploads/2010/05/Foundations-of-Lifelong-Health.pdf

The Foundations of Lifelong Health Are Built in Early Childhood 7/2010 Developmental Milestones Baby Brain Map Zerotothree.org Being Born in Winter Can Mess With Your Head livescience.com Brain Development During Childhood and Adolescence NIMH.gov Children's Growth Charts Developmental Milestones Developmental Milestones of Early Literacy Healthychildren.org Developmental Screening CDC Element of surprise helps babies learn Sciencedaily.com 4/2015 How Active is Your Baby? Healthychildren.org Emotional and Social Development: Birth to 3 Months Healthychildren.org Emotional and Social Development: 4 to 7 Months Healthychildren.org Emotional and Social Development: 8 to 12 Months Healthychildren.org Encyclopedia of Children's Health Identifying Emotional and Behavioral Problems in Children Aged 4�17 Years: United States, 2001�2007 CDC.gov Many things can be read in a newborn's gaze 3/2015 Normal and Abnormal Sexual Differentiation Urologyhealth.org Child Development MedlinePlus Infants (0-1 Year) Toddlers (1-2 Years) Toddlers (2-3 Years) Preschoolers (3-5 Years) Growth Disorders MedlinePlus Use of World Health Organization and CDC Growth Charts for Children Aged 0--59 Months in the United States MMWR 9/2010

Growth Charts CDC Growth Charts Child Growth Chart Calculator Babycenter.com Clinical Growth Charts CDC.gov Growth Charts kidshealth.org Individual Growth Charts CDC.gov Kids Growth Chart Percentiles Calculator About.com MedCalc: Interactive Growth Charts Medcalc.com Pregnancy Week by Week WIC Growth Charts USDA.gov Data Tables CDC.gov Socioeconomic Disparities Affect Prefrontal Function in Children 2008 The WHO Child Growth Standards WHO.int WHO Growth Charts CDC.gov

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Human Enhancement

• Human Enhancement The Scientific and Ethical Dimensions of Striving for Perfection 7/2016
• U.S. Public Wary of Biomedical Technologies to �Enhance� Human Abilities 7/2016

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Immunizations/Vaccines

Graphic source: https://www.immunizenevada.org/news/why-it-important-follow-newborn-2-year-old-immunization-schedule

2018 Recommended Immunizations for Children from Birth Through 6 Years Old CDC.gov Parents' Guide to Childhood Immunizations 9/2016 Six Things YOU Need to Know about Vaccines CDC.gov Top 10 Vaccine-Preventable Diseases WebMD Adult Immunization Schedules United States, 2015 CDC.gov Childhood Immunization MedlinePlus Immunization Schedules for Infants and Children in Easy-to-read Formats CDC.gov Immunization Schedules for Preteens and Teens in Easy-to-read Formats CDC.gov Immunization Schedules for Adults in Easy-to-read Formats CDC.gov National, State, and Selected Local Area Vaccination Coverage Among Children Aged 19�35 Months � United States, 2013 MMWR 8/2014 State Vaccination Requirements CDC.gov Understanding Vaccinations Publichealth.org

Graphic source: http://www.businessinsider.com/anti-vaccine-movement-and-measles-2015-2

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Premature Births

• A Primer on Preemies
• Premature Babies MedlinePlus
• Premature Birth

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Health Issues

A Visual Guide to Birthmarks WebMD Immunizations and Developmental Milestones for Your Child from Birth Through 6 Years Old 2013 Birth Defects MedlinePlus Central Nervous System Abnormalities Associated with Fetal Alcohol Syndrome (FAS) MMWR 10/2005 Child Behavior Disorders MedlinePlus Children's Health MedlinePlus Children and Teens Told by Doctors That They Were Overweight --- United States, 1999--2002 MMWR 9/2/2005 Cleft Lip and Palate MedlinePlus Cytomegalovirus (CMV) Disease: The Congenital Disease Mothers Don't Know About CDC.gov Developmental Disabilities MedlinePlus Down Syndrome Genetics Home Reference Down Syndrome MedlinePlus Guidelines for Identifying and Referring Persons with Fetal Alcohol Syndrome MMWR 10/2005 Levels and trends in child malnutrition WHO.int 2015 Newborn Screening CDC.gov Parent Toolkit Purpose of Newborn Hearing Screening Healthychildren.org Rickets MedlinePlus Sudden Infant Death Syndrome (SIDS) CDC.gov Sudden Infant Death Syndrome MedlinePlus Sudden Unexpected Infant Death CDC.gov fact sheet Sudden Unexpected Infant Death and Sudden Infant Death Syndrome CDC.gov Use of Selected Clinical Preventive Services to Improve the Health of Infants, Children, and Adolescents United States, 1999-2011 CDC 9/2014

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Infectious Disease Information

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MCH Data Sites

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MCH Reports

• Government & Non-government Reports
• Rethinking MCH: The Life Course Model as an Organizing Framework HRSA.gov 2010

Mental Health Issues

• Addressing the Mental Health Needs of Young Children and Their Families SAMHSA.gov
• Anxiety Disorders in Children and Adolescents NIMH.gov
• Bipolar Disorder in Children and Adolescents NIMH.gov
• Children's Mental Health APA.org
• Depression in Children and Adolescents NIMH.gov
• Mental Health in the United States: Prevalence of Diagnosis and Medication Treatment for Attention-Deficit/Hyperactivity Disorder --- United States, 2003 MMWR 9/2/2005
• Percentage of Children Aged 4--17 Years with Emotional or Behavioral Difficulties* Who Used Mental Health Services, by Type of Service --- United States, 2003 MMWR 9/2/2005

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Non-profit Organizational Resources

• Bright Futures.Org
• Child Health Policy Project (RAND)
• Foundation for Child Development
• KidsHealth
• Minority Health Issues
• Search Institute
• SparkAction.org

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Search Engine Sites - Health

• Cancernet (NCI) for Health Professionals
• Health Statistics
• National Library of Medicine
• National Prevention Information Network
• Search Engines Index

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Search Engine Sites - MCH

• Bright Futures
• NCEMCH's Databases Page
• Pediatric Growth Charts
• Search Engines Index

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Services

• Association of State and Territorial Health Officals
• Children's Defense Fund
• Children With Special Health Care Needs Services, by State
• Division TEACCH: An Autism Resource
• Employee Benefit Research Institute
• Families.Org
• Family Voices (Children with Special Health Care Needs)
• Federation for Children with Special Needs
• Healthy Kids.Org
• National Center for Education in Maternal and Child Health
• National Info Center for Children with Disabilities (NICHCY)
• The Future of Children

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Statistics

• National Survey of Children with Special Health Care Needs (NS-CSHCN) Chartbook 2009-2010 6/2013
• NS-CSHCN Chartbook 2005-2006 Web Site

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CDC Immunization Schedules

Recommended Immunization Schedule for Children and Adolescents Aged 18 Years or Younger, UNITED STATES, 2017

CDC's Immunization Tables

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PUBLISHED ON THE WEB: October 13, 1999; February 19, 2001
Updated: 11/17/2018 R1,143
Comments, suggestions, dead link reports:
Web page Address: http://www.bettycjung.net/Mch.htm

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© Copyright 1999 - 2018 Betty C. Jung
All rights reserved.

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