Maternal & Child Health
Resources on the Internet

Gene Editing

• 4 things you wanted to know about gene editing 2/2016
• W.H.O. Panel Demands a Registry for Human Gene Editing 3/2019
• A guide to CRISPR, the human gene-editing tool that has scientists excited and terrified Vox.com 5/2015
• A Pause to Weigh Risks of Gene Editing
• AP News Guide: Summit opens debate on ethics of gene editing 11/2015
• A prudent path forward for genomic engineering and germline gene modification 5/2015
• A simple guide to CRISPR, one of the biggest science stories of the decade 12/2018
• Breaking Taboo, Swedish Scientist Seeks To Edit DNA Of Healthy Human Embryos 9/2016
• Chinese 'Edit' Human Embryos, Scientists Urge Moratorium on Research ndtiv.com 4/2015
• Chinese edit human embryos, spark fury indiatimes.com 4/2015
• Chinese Paper on Embryo Engineering Sparks International Debate AAAS.org 2015
• Chinese researchers have genetically modified a human embryo and many scientists think they've gone too far Qz.com 2015
• Correction of a pathogenic gene mutation in human embryos 8/2017
• Chinese Scientists Edit Genes of Human Embryos, Raising Concerns NYtimes 4/2015
• Chinese scientists genetically modify human embryos Nature.com 4/2015
• Chinese scientists: We've edited genes of human embryos seattletimes.com 4/2015
• China shocks world by genetically engineering human embryos telegraph.co.uk 4/2015
• Controversial Human Embryo Editing: 5 Things to Know 9/2016
• Craig Venter: We Are Not Ready to Edit Human Embryos Yet 2/2016
• CRISPR Cas9 genome editing induces a p53-mediated DNA damage response 6/2018
• CRISPR gene-editing system unleashed on RNA 6/2016
• CRISPR Off Switch Could Increase Precision Of Gene-Editing Tool 12/2016
• CRISPR: The new tool in the gene editing revolution explained 4/2016
• CRISPR-Cas9: From super humans to UC vs MIT fight over patent 5/2015
• CRISPR/Cas9-mediated gene editing in human tripronuclear zygotes 4/2015
• CRISPR/Cas9-mediated gene editing in human tripronuclear zygotes 4/2015 PDF
• Designing Superhumans NPR.com
• Don't edit the human germ line Nature.com 3/2015
• Easy DNA Editing Will Remake the World. Buckle Up. 7/2015
• Editing human embryos with CRISPR is moving ahead now's the time to work out the ethics 7/2017
• Editing Human Embryos: So This Happened Nationalgeographic.com
• Engineering the Perfect Baby Technologyreview.com 4/2015
• Ethics of embryo editing divides scientists Nature.com 3/2015
• Everything You Need to Know About CRISPR Gene Editing's Monster Year 12/2015
• Gene editing's promise, risks focus of scientists summit 11/2015
• Gene-editing technique offers hope for hereditary diseases Sciencedaily.com 4/2015
• Gene Editing Technology CRISPR-CAS9 May Not Work On Human Complex Traits Such As Intelligence 12/2015
• Gene Manipulation In Human Embryos Provokes Ethical Questions Huffingtonpost.com 2015
• Genome Editing Technologyreview.com
• Genome Editing, Bioethics, Policy and Politics in the UK and in the US 9/22/2015
• Genome-editing tool could increase cancer risk 6/2018
• Guidelines for human genome editing 1/2016
• Heritable genome editing: Action needed to secure responsible way forward 7/2018
• HIV Can Resist CRISPR/Cas9 Gene-Editing Attacks: Study 4/2016
• How to Stop Rogue Gene-Editing of Human Embryos? Some U.S. researchers knew of a Chinese scientist’s intentions to implant edited embryos but were unable to stop him. Now scientific institutions are trying to devise global safeguards. 1/2019
• Impact of Genome Editing Techniques 4/2016
• In Breakthrough, Scientists Edit a Dangerous Mutation From Genes in Human Embryos 8/2017
• Industry Body Calls for Gene-Editing Moratorium 3/2015
• Is gene editing moving too fast? CRISPR scientist raises concerns. (+video) 12/2015
• NOTICE PERTINENT TO THE NOVEMBER 2013 REVISIONS OF THE NIH GUIDELINES FOR RESEARCH INVOLVING RECOMBINANT OR SYNTHETIC NUCLEIC ACID MOLECULES (NIH GUIDELINES)
• Opposition mounts to genetic modification of human embryos 11/2015
• Plan to Synthesize Human Genome Triggers a Mixed Response 6/2016
• Promise and peril: a primer on gene editing 2/2016
• Read This Before You Freak Out Over Gene-Edited Superbabies
• Scientists Call for a Summit on Gene-Edited Babies Technologyreview.com 3/2015
• Scientists create first genetically modified human embryo Engadget.com 4/2015
• Scientists Find Form of Crispr Gene Editing With New Capabilities
Scientists Say They Hope To Create A Human Genome In The Lab 6/2016
• Scientists Upload a Galloping Horse GIF Into Bacteria With Crispr 7/2017
• Scientists Want to Create Synthetic Human Genome 6/2/2016
• Scientists want to perfect humanity with synthetic DNA 6/2016
• STAT-Harvard poll: Americans say no to designer babies 2/11/2016
• Study raises fears of collateral damage in gene editing 7/2018
• The Genome Engineering Revolution 5/2015
• The Genome Project Write 6/2016
• The Public and Genetic Editing, Testing, and Therapy 1/2016
• The rumors were true: Scientists edited the genomes of human embryos for the first time Washingtonpost.com 4/22/2015
• The WIRED Guide to Crispr 4/2018
• UC Berkeley, MIT scientists argue over patent rights to gene-editing tool 5/2015
• Using CRISPR, scientists efficiently edit genome of viable human embryos 7/2017
• U.S. Public Wary of Biomedical Technologies to Enhance Human Abilities 7/2016
• What is CRISPR and what does it mean for genetics? 4/2016
• What Is CRISPR? 4/2017
• Where in the world could the first CRISPR baby be born? 10/2015
• Why China won't listen to Western scientists about genetically modifying the human embryo Qz.com 6/2015
• Will Genome Editing Allow Scientists To Create The Perfect Baby? 11/2015
• World's first genetic modification of human embryos reported: Experts consider ethics Sciencedaily.com 4/2015

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Genomics

Graphic source: https://www.visualcapitalist.com/cp/basics-of-dna-and-genetic-systems/

Full genome sequencing was completed for a total of 79 healthy volunteers and 337 patients diagnosed with one of 10 different immune-mediated diseases (top row) to help build a new genetic atlas, ImmuNexUT. Researchers isolated 28 different immune cell types from their blood samples (bottom row) and measured the expression of genes inside each cell type. © Mineto Ota, CC BY 4.0 Graphic source: https://www.u-tokyo.ac.jp/focus/en/press/z0508_00177.html

Graphic source: https://www.washingtonpost.com/news/speaking-of-science/wp/2016/03/01/scientists-identify-genes-associated-with-gray-hairs-and-unibrows/

Graphic source: https://www.sciencedaily.com/releases/2016/08/160802172614.htm

• GTEx Portal
• Five Misconceptions About the Role of Genomics in Public Health 7/2016
• 11 Surprising Things Your Genes Say About You 8/2016
• A Brief Guide to Genomics genome.gov
• A Longer Life May Lie in Number of Anti-Inflammatory Genes Livescience.com 4/2015
• A major difference between DNA and RNA could explain why one is the go-to blueprint for life 8/2016
• Applying Public Health Strategies to Primary Immunodeficiency Diseases A Potential Approach to Genetic Disorders MMWR 1/16/04
• Accessing your own genomic data is a civil right but requires strategies to manage safety 1/2018
• CADASIL (Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy) Genetics Home Reference National Institutes of Health
• CDC's Office of Genomics & Disease Prevention
• Charting Genetic Variation Across the Globe NIH.gov 10/2015
• Consumer DNA Tests Are Wrong 40 Percent of the Time 4/2018
• Crime scene discovery: Scientist separates the DNA of identical twins Sciencedaily.com 4/2015
• Critical step found in DNA repair, cellular aging 3/2017
• Genetics has learned a ton — mostly about white people. That’s a problem. The overwhelming whiteness of genetics research is holding back medicine.
• dbGaP database of Genotypes and Phenotypes. NIH.gov
• Designer Medicine Needs More Than Big Data, It Needs New Science 4/2016
• Genetic testing: Opportunities to unlock value in precision medicine
• DNA can't explain all inherited biological traits, research shows Sciencedaily.com 4/2015
• DNA Fingerprinting WebMD
• DNA repair discovery could lead to drugs to reverse ageing, fight cancer and help space travel 3/2017
• Don't Give Your DNA to Giant Genetic Databases 5/2018
• Ehlers-Danlos syndrome MedlinePlus
• Epigenetics: A Revolutionary Look at How Humans Work
• Explaining Epigenetics': The Health Buzzword You Need to Know Time.com 6/2015
• False-positive results released by direct-to-consumer genetic tests highlight the importance of clinical confirmation testing for appropriate patient care 3/2018
• Family Health History Toolkit Utah.gov
• Family History and Improving Health AHRQ.gov
• Family History is Important for Health CDC
• FDA Rule for Current Good Tissue Practice for Human Cells, Tissues, and Cellular and Tissue-Based Products MMWR 5/20/2005
• Frequently Asked Questions (FAQs) on the CODIS Program and the National DNA Index System FBI.gov
• Genes explain why we are sick in winter Nzhearald.co.nz 5/2015
• Gene Linked to Optimism and Self-Esteem NIH.gov
• Genetic Brain Disorders MedlinePlus
• Genetic Disorders MedlinePlus
• Genetics Home Reference
• Genetic Testing for Developmental Disabilities, Intellectual Disability, and Autism Spectrum Disorder AHRQ.gov
• Genetic Testing Registry NIH.gov
• Genome Biology
• Genome.Gov
• Genomics and Public Health at CDC MMWR 12/2006
• Genome-Wide Association Studies Genome.gov
• Home DNA Kits: What Do They Tell You? 4/2018
• If European Borders Were Drawn By DNA Instead Of Ethnicity
• Is It Possible to Clone a Dinosaur? 4/2016
• 10,000 Microbes Cornered in Map of Human Body Livescience.com 6/2012
• Keeping Pace with the Times The Genetic Information Nondiscrimination Act of 2008 NEJM 6/2008
• Learning A Foreign Language Isn't All About Discipline And Dedication Genetics Play A Role As Well 6/2016
• Low levels of simple chemical associated with aging, DNA damage 3/2017
• March of Dimes
• Metabolic Disorders MedlinePlus
• Mothers' Exposure to Air Pollutants Linked to Chromosome Damage in Babies NIH
• New atlas of genetic function maps complexities of immune system and immune diseases. Connecting genetic variants to changes in expression levels to understand immune-mediated diseases 4/2021
• Newborn Screening for Cystic Fibrosis
• New England Regional Genetics Group
• One gene makes earwax wet or dry BBC
• Organization of Teratology Information Services (OTIS)
• Personal microbiomes shown to contain unique 'fingerprints' Sciencedaily.com 5/2015
• Pharmacogenomics Knowledge Base (PharmGKB)
• Prenatal test developed with Chinese military stores gene data 7/2021
• Race against time: ethnicity of many crucial medical cell lines misclassified. For some diseases, ethnicity counts. But researchers have found some cell lines classified as African American are in fact European. 3/2019
• Talking Glossary of Genetic Terms Genome.gov
• 23andMe has a problem when it comes to ancestry reports for people of color 8/2016
• Undermining Genetic Privacy? Employee Wellness Programs and the Law 5/2017 NEJM
• Wealth and power may have played a stronger role than 'survival of the fittest' Sciencedaily.com 3/2015
• What Both the Left and Right Get Wrong About Race Setting the scientific record straight on race, IQ, and success. 6/2017
• What's changed in genetics since your high school biology class? 8/2016
• What Defines a Stem Cell? Our cells have more diverse regenerative capabilities than anyone expected. 12/2018
• What does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act Coalition for Genetic Fairness
• What's in Your Genes? Ancient Parasites Livescience.com
• When your genome costs less than your iPhone: The beautiful, terrifying future of DNA sequencing
• Why Bad Genes Aren't Always Bad News Utoronto.ca 11/2016
• Why bad genes aren't always bad news 11/2016
• Why bad genes don't always lead to bad diseases Sciencedaily.com 7/2015
• Why do we have blood types?
• Why would scientists want to build human genomes from scratch?
• Your DNA Changes With the Seasons, Just Like the Weather Wired.com 5/2015
• You won't believe these three unexpected discoveries and neither did the scientists who made them 9/2018

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Genetics Education

• Genetic Alliance
• Genetic Counseling MedlinePlus
• Genetics Education Center (University of Kansas Medical Center)
• Genetics Education Modules for Teachers
• Genetics Education Network
• Genetics Home Reference
• Understanding Genetics - A Guide for Patients and Professionals Genticalliance.org
(Also for PHCE)
• University of Kansas Medical Center Genetic/Rare Conditions

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Gene Therapy

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• Genes and Gene Therapy MedlinePlus

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Genetic Testing

Graphic source: https://www.gao.gov/products/GAO-20-593

• Genetic Services: Information on Genetic Counselor and Medical Geneticist Workforces GAO.gov
• Genetic testing: Opportunities to unlock value in precision medicine
• Genetic Testing for Hereditary Cancer Syndromes Cancer.gov
• Genetic testing results don't change how most people behave 3/2016
• Prenatal Genetic Diagnostic Tests
• Prenatal Genetic Testing Chart (Infographic)

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Growth & Development

Graphic source: https://46y5eh11fhgw3ve3ytpwxt9r-wpengine.netdna-ssl.com/wp-content/uploads/2010/05/Foundations-of-Lifelong-Health.pdf

• CDC Extended BMI-for-Age Growth Charts – Download 12/2022
• CDC's Milestone Tracker App
• The Foundations of Lifelong Health Are Built in Early Childhood 7/2010
• Developmental Milestones
• Baby Brain Map Zerotothree.org
• Being Born in Winter Can Mess With Your Head livescience.com
• Brain Development During Childhood and Adolescence NIMH.gov
• Children's Growth Charts
• Developmental Milestones
• Developmental Milestones of Early Literacy Healthychildren.org
• Developmental Screening CDC
• Element of surprise helps babies learn Sciencedaily.com 4/2015
• How Active is Your Baby? Healthychildren.org
• Emotional and Social Development: Birth to 3 Months Healthychildren.org
• Emotional and Social Development: 4 to 7 Months Healthychildren.org
• Emotional and Social Development: 8 to 12 Months Healthychildren.org
• Encyclopedia of Children's Health
• Identifying Emotional and Behavioral Problems in Children Aged 4-17 Years: United States, 2001-2007 CDC.gov
• Many things can be read in a newborn's gaze 3/2015
• Normal and Abnormal Sexual Differentiation Urologyhealth.org
• Child Development MedlinePlus
• Infants (0-1 Year)
• Toddlers (1-2 Years)
• Toddlers (2-3 Years)
• Preschoolers (3-5 Years)
• Growth Disorders MedlinePlus
• Use of World Health Organization and CDC Growth Charts for Children Aged 0--59 Months in the United States MMWR 9/2010

Growth Charts

• CDC Growth Charts
• Child Growth Chart Calculator Babycenter.com
• Clinical Growth Charts CDC.gov
• Growth Charts kidshealth.org
• Individual Growth Charts CDC.gov
• Kids Growth Chart Percentiles Calculator About.com
• MedCalc: Interactive Growth Charts Medcalc.com
• Pregnancy Week by Week
• WIC Growth Charts USDA.gov
• Data Tables CDC.gov
• Socioeconomic Disparities Affect Prefrontal Function in Children 2008
• The WHO Child Growth Standards WHO.int
• WHO Growth Charts CDC.gov

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Human Enhancement

• Human Enhancement The Scientific and Ethical Dimensions of Striving for Perfection 7/2016
• U.S. Public Wary of Biomedical Technologies to Enhance Human Abilities 7/2016

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Immunizations/Vaccines

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Graphic source: https://www.nature.com/articles/d41586-021-03686-x

Graphic source: https://www.pewresearch.org/fact-tank/2021/10/08/states-have-mandated-vaccinations-since-long-before-covid-19/

Graphic source: https://vaccinateyourfamily.org/why-vaccinate/vaccine-benefits/

• 2022 Recommended Vaccinations for Infants and Children (birth through 6 years) Parent-Friendly Version
  
  Graphic source: https://www.cdc.gov/vaccines/parents/downloads/parent-ver-sch-0-6yrs.pdf

  
  Graphic source: https://www.cdc.gov/vaccines/parents/downloads/parent-ver-sch-0-6yrs.pdf

• Recommended Adult Immunization Schedule, United States, 2022 2/2022 ACPjournals.org
• How COVID vaccines shaped 2021 in eight powerful charts 12/2021
• Pink Book Series/2019 - 2020 Pink Book Archives 6/2022. CDC is offering a series of weekly one-hour web-on-demand videos that will provide an overview of vaccination principles, general best practices, immunization strategies, and specific information about vaccine-preventable diseases and the vaccines that prevent them. Each video will include updated information from recent Advisory Committee on Immunization Practices (ACIP) meetings and votes
• Immunization Schedules 2/2022
• Principal Controversies in Vaccine Safety in the United States 2/2019
• States have mandated vaccinations since long before COVID-19 10/2021
• Top 10 Vaccine-Preventable Diseases WebMD
• Childhood Vaccines MedlinePlus
• Delayed Measles Vax May Be More Effective - A first measles vaccine given at 12 or 13 months of age is less likely to provide lasting protection than a shot at 15 months or later, researchers reported. 10/2013
• Child and Adolescent Immunization Schedule CDC.gov
• Recommendations for Ages 19 Years or Older, United States, 2022 CDC.gov
• State Vaccination Requirements CDC.gov
• Growing Up with Vaccines: What Should Parents Know? CDC.gov

Graphic source: http://www.businessinsider.com/anti-vaccine-movement-and-measles-2015-2

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Premature Births

• A Primer on Preemies
• Premature Babies MedlinePlus
• Premature Birth

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Health Issues

• A Visual Guide to Birthmarks WebMD
• Immunizations and Developmental Milestones for Your Child from Birth Through 6 Years Old 2013
• Birth Defects MedlinePlus
• Central Nervous System Abnormalities Associated with Fetal Alcohol Syndrome (FAS) MMWR 10/2005
• Child Behavior Disorders MedlinePlus
• Children's Health MedlinePlus
• Children and Teens Told by Doctors That They Were Overweight --- United States, 1999--2002 MMWR 9/2/2005
• Cleft Lip and Palate MedlinePlus
• Cytomegalovirus (CMV) Disease: The Congenital Disease Mothers Don't Know About CDC.gov
• Developmental Disabilities MedlinePlus
• Down Syndrome Genetics Home Reference
• Down Syndrome MedlinePlus
• Guidelines for Identifying and Referring Persons with Fetal Alcohol Syndrome MMWR 10/2005
• Levels and trends in child malnutrition WHO.int 2015
• Newborn Screening CDC.gov
• Parent Toolkit
• Purpose of Newborn Hearing Screening Healthychildren.org
• Rickets MedlinePlus
• Sudden Infant Death Syndrome (SIDS) CDC.gov
• Sudden Infant Death Syndrome MedlinePlus
• Sudden Unexpected Infant Death CDC.gov fact sheet
• Sudden Unexpected Infant Death and Sudden Infant Death Syndrome CDC.gov
• Use of Selected Clinical Preventive Services to Improve the Health of Infants, Children, and Adolescents United States, 1999-2011 CDC 9/2014

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Infectious Disease Information

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MCH Data Sites

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MCH Reports

• Government & Non-government Reports
• Rethinking MCH: The Life Course Model as an Organizing Framework HRSA.gov 2010

Mental Health Issues

• Addressing the Mental Health Needs of Young Children and Their Families SAMHSA.gov
• Anxiety Disorders in Children and Adolescents NIMH.gov
• Bipolar Disorder in Children and Adolescents NIMH.gov
• Children's Mental Health APA.org
• Depression in Children and Adolescents NIMH.gov
• Mental Health in the United States: Prevalence of Diagnosis and Medication Treatment for Attention-Deficit/Hyperactivity Disorder --- United States, 2003 MMWR 9/2/2005
• Percentage of Children Aged 4--17 Years with Emotional or Behavioral Difficulties* Who Used Mental Health Services, by Type of Service --- United States, 2003 MMWR 9/2/2005

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Non-profit Organizational Resources

• Bright Futures.Org
• Child Health Policy Project (RAND)
• Foundation for Child Development
• KidsHealth
• Minority Health Issues
• Search Institute
• SparkAction.org

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Search Engine Sites - Health

• Cancernet (NCI) for Health Professionals
• Health Statistics
• National Library of Medicine
• National Prevention Information Network
• Search Engines Index

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Search Engine Sites - MCH

• Bright Futures
• NCEMCH's Databases Page
• Pediatric Growth Charts
• Search Engines Index

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Services

• Association of State and Territorial Health Officals
• Children's Defense Fund
• Children With Special Health Care Needs Services, by State
• Division TEACCH: An Autism Resource
• Employee Benefit Research Institute
• Families.Org
• Family Voices (Children with Special Health Care Needs)
• Federation for Children with Special Needs
• Healthy Kids.Org
• National Center for Education in Maternal and Child Health
• National Info Center for Children with Disabilities (NICHCY)
• The Future of Children

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Statistics

• National Survey of Children with Special Health Care Needs (NS-CSHCN) Chartbook 2009-2010 6/2013
• NS-CSHCN Chartbook 2005-2006 Web Site

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CDC Immunization Schedules

Graphic source: https://www.vox.com/2019/1/29/18201982/measles-outbreak-virus-vaccine-symptoms

Recommended Immunization Schedule for Children and Adolescents Aged 18 Years or Younger, UNITED STATES, 2017

CDC's Immunization Tables

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PUBLISHED ON THE WEB: October 13, 1999; February 19, 2001
Updated: 12/25/2022 R1,547
Comments, suggestions, dead link reports:
Web page Address: http://www.bettycjung.net/Mch.htm

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© Copyright 1999 - 2023 Betty C. Jung
All rights reserved.

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